Browsing by Author "Adam , Adam Hussein"

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    Adaptation and Validation of Family Burden of Care Assessment Schedule for Autism Spectrum Disorders (Asd) in Nairobi Metropolitan
    (Daystar University, School of Applied Human Sciences, 2015-05) Adam , Adam Hussein
    The associative burden of care for long-term health conditions like Autism Spectrum Disorder (ASD) demand the development of psychometric instruments for assessment. Beyond those living with ASD, studies show that family members get affected. This study validated the Family Burden of Care Assessment Schedule (FBCAS), determined the burden of care on ASD children and examined the correlation between objective, subjective demand and subjective stress burden. It sampled 460 caregivers of children living with ASD linked to Kenya Association for the Intellectually Handicapped (KAIH) in Nairobi Metropolitan region. It adopted and adapted Family Burden of Care Assessment Schedule (FBCAS) from Burden Assessment Schedule (BAS) for data collection. The questionnaire was self-administered to such caregivers. 435 questionnaires were completed and entered into Ms Excel and analysed using the IBM SPSS 21, and XL STAT Softwares. The researcher then exported data to SPSS for descriptive statistical analyses of demographic variables. The research then carried out a Confirmatory Factor Analysis (CFA) to validate FBCAS and bivariate correlations to determine the relationships between the factors using XL STAT. The FBCAS scored 0,712 on the Kaiser-Meyer-Olkin tests (KMO), its Cronbach’s alpha coefficient its score was 0.671, indicating acceptable levels of reliability. Its nine-factor extractions showed low levels of inconsistency between variables. The findings show that caring for a child with ASD has negative financial, physical health, social, marital and psychological outcomes for caregivers. This study reports a significant correlation between objective and subjective burden. Hence, there are interrelationships in the mechanisms by which these dichotomies affect caregivers.